Dave deBronkart 20091229

“A new world of Participatory Medicine is evolving, in which patients become potent agents in creating and managing their own health, in partnership with physicians"
 

E-Patient Dave

By SNolan, Friday, 18th November 2011 | 0 comments
Filed under: Technology, Innovation, Healthcare, Participatory Medicine.

A Voice of Patient Engagement

Dave deBronkart, better known as “e-Patient Dave,” is the leading spokesperson for the e-Patient movement."e-patients" are encouraged to be empowered, engaged, equipped and enabled.

A high tech executive and online community leader for many years, he was diagnosed in 2007 with Stage IV kidney cancer, with a median survival of just 24 weeks. He used the internet in every way possible to partner with his care team and beat this unbeatable disease. Today he is well.

In 2008 he discovered the "e-patient movement", and began studying, blogging, and speaking at conferences, and in 2009 was elected founding co-chair of the new Society for Participatory Medicine. He was a leading voice in Washington for new federal regulations to require that patients and families have access to their electronic medical records, and is now engaged full time in speaking and advocating for patient engagement.

A year after the diagnosis Dave was invited to join the annual retreat of the e-Patient Scholars Working Group. Founded by the late Tom Ferguson MD, a true visionary, the group consists of pioneers, both medical and lay, who have been quietly altering the balance of power in healthcare, demonstrating that as the internet brings patients together with information and with each other, a new world of Participatory Medicine is evolving, in which patients become potent agents in creating and managing their own health, in partnership with physicians.
 
An accomplished speaker and writer in his professional life before his illness, today Dave is an advocate and activist engaged in opening health care information directly to patients on an unprecedented level, thus creating a new dynamic in how information is delivered, accessed and used by the patient. This is revolutionizing the relationship between patient and health care providers, which in turn will impact insurance, careers/jobs, quality of life and the distribution of finances across the entire spectrum of health care.

He's appeared in Time, U.S. News, and the Health Leaders magazine cover story "Patient of Future". In December 2009 Health Leaders named him to their annual list of "20 people who make Healthcare Better" and in 2010 he released his first book: "Laugh, Sing and Eat Like A Pig "How an empowered patient beat Stage IV Cancer (and what we can learn from it)

To book e-patient Dave for a Speaking Engagement; call Sandra on 00 353 1 284 1111 or email:
sandran@connectspeakersbureau.com

 



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Eat Sing   Eat like a Pig

What is the title about?
It is the the approach Dave chose to take to the news that he had a lethal cancer and a summary of the advice he got in the first few weeks after diagnosis.
In his own words:

•“Laugh” is for the healing power of laughter, as famously discussed by Saturday Review editor Norman Cousins in his book Anatomy of an Illness as Perceived by the Patient

•“Sing” is the advice my doctor gave. I had asked if I should drop out of my much-loved championship chorus to save energy, but he said, “You don’t want to stop doing life activities that you love – it sends the wrong message.” Wow. So, okay, laugh and sing! Not bad.

•“Eat like a pig” refers to the diet the hospital sent me, to increase my caloric intake, to combat weight loss and prepare for the battle ahead.

In my online community I told people “If I ever write a book about this, that’s what I’ll call it.” And here we are.
Admittedly, that’s not a conventional approach to a deadly disease. But that’s the point.

I’m committed to a world where healthcare works better – and not just for patients but for the people whose work is to deliver care. I agree with the words of Warner Slack MD, who said patients are “the most under-utilized resource” in health IT, and I think it applies to all of healthcare.
 

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